As I pulled up to the hospital I turned down the music in my car and took some deep breaths. "It's okay, you're okay right now just get out of the car and go inside. You'll be fine."
I forced myself to open the car door and cautiously got out as if I was expecting the grief to hit me with sudden force."Okay, so far so good."
I opened the back of the mini van, grabbed the big box, and made my way towards the Cancer Center with the wind whipping my hair. As I approached the door I noticed a sweet looking older woman and we made small chat and then exchanged smiles when we parted from the elevator on the 2nd floor. "This is not bad. I can do this. No biggie."
I made my way to the familiar oncologist's office hoping to leave the kits with the P.A. that had taken a particular interest in my mom and been so kind to us. I noticed a few nurses that I recognized and felt a small twinge of pain. The receptionist smiled in recognition when she saw me. It was a pity smile. I explained to her that I was hoping to see Heather and donate the drainage kits.
"I'm sorry Heather is with a patient right now. I suggest you take the kits directly to the Heart and Lung Center. I'll tell her you said hello."
I knew the Heart and Lung Center was where I logically should have gone in the first place but I wanted to thank the P.A. for her sweet card and face my fear of the Cancer Center. It felt like it was some right of passage in my grief process.
Over the past nine months I had gotten to know the entire hospital fairly well so I took a short cut to the Heart and Lung Center. Again I made my way through the wind and as I passed people coming and going I wondered if they were curious what was in the box I was carrying. They couldn't possibly know how difficult carrying that box was or that every time I looked at one of the kits inside it my mind flashed to images of myself trying to calm and console my mom as I drained the fluid from her lung. They couldn't possibly know that the first time I saw blood in the fluid from her lung I silently panicked and had a meltdown when the home health nurse was not concerned. She knew what I was trying to deny. My mom was dying and she was dying soon; there was nothing to be done about the blood.
I forced those memories and images from my mind and turned on the "numb switch". I decended the stairs into the Heart and Lung Center and approached the front desk. In one breath I spat out the following like a rehearsed line, "my mom passed away and we had all of these lung drainage kits they're brand new and still completely sealed I know how expensive they are and thought some of your patients might be able to use them." The two receptionists just looked at me trying to process what I had just said then their faces softened and with great compassion one of them asked, "What was your mom's name?" Ouch! In my mind I was thinking, "her name IS Kathleen Ewell, not was". I knew she meant well, most people do, so I blew it off and told them her name. They exchanged a quick glance with each other and then looked back at me with tears in their eyes. "Yes, we remember her. We're so very sorry for your loss. Thank you for donating these kits. Somebody is going to be very grateful." I quietly responded, "It's what she would've wanted. She received some free samples from other patients as well. It's come full circle now."
I don't remember saying bye to them, I hope I did. The next thing I remember I was practically running up the stairs trying to get out of there as fast as I could. "I shouldn't be here right now. This can't be real". When I got outside, memories of times spent with her in that very hospital came in a continuous stream. Her stroke, PET scans, CT scans, MRI's, when she was diagnosed, a class I took about chemotherapy, weekly appointments to check her INR, an endoscopy, radiation and chemotherapy treatments, a blood transfusion, and the final time she was admitted for severe confusion and hallucinations before they sent her home with home health, all came rushing back.
I could see us sitting in the chemo room while she received an infusion of poison into her veins, my mom talking to everyone she sat by and wishing them luck. I could see myself rubbing her back, as we waited to be called back for her endoscopy. My mom was nauseous that day and curled up in a ball on the waiting room chairs. I could see my mom lying in her hospital bed telling us that she was forced to marry Osama Bin Ladin with terror in her eyes, fully convinced it was real. I could see my siblings and I eating together in the cafeteria discussing what should happen when she dies. I could see all of this and so much more as if I were out of my body, standing there watching it.
My eyes began to fill with tears and depsite my best efforts to keep them in, they began to trickle down my cheeks. Finally I made it to my car, opened the door, sat down and promptly laid my forehead on the steering wheel and sobbed. I sat there in the hospital parking lot crying in my mini van for a few minutes before I felt her.
Suddenly an indescribable peace came over me and I felt my mom's presence in the front passenger seat next to me. I didn't audibly hear her with my ears, nor did I see her with my physical eyes but I knew she was there and somehow she spoke these words to my heart, "It's okay baby, it's okay". Such a simple message but it was exactly the kind of thing she always said to comfort me in her physical body. Moms have a gift to calm our hearts without saying very much, at least mine does. She just lets me cry and allows me to feel how I feel, silently validating her unconditonal love for me.
With that I sat up, dried my eyes, and turned the key in the ignition. Upon leaving the parking lot a contentment washed over me and the distinct thought came to me that I needed to share some more of my experiences caring for my mom on my blog. I don't know why. Perhaps, like with the experiences I shared about the abuse of my daughter and my divorce that followed, it is for me to heal more fully. Perhaps it can help someone, somewhere who has lost a loved one to cancer or is facing the ugly monster in the face right at this very moment. My hope is that they feel a little less alone and a little more understood. I don't fully understand the whole reason and maybe I never will. All I know is that the nine months I cared for my mom was life altering. It was simultaneously the hardest, most difficult thing I have ever done and the sweetest, most tender, and sacred thing I have ever experienced. It was nine months of my life that I look back on with no regrets. I learned all about a different, deeper kind of love. An eternal love that I could never have comprehended before. I thank you all in advance for allowing me to be vulnerable and share a very special piece of my heart; caring for my mom.
